Having a child diagnosed with Asthma or other chronic conditions can be worrying for parents everywhere and health care teams can differ in the way they support families. Families can have many supportive, practical, and informational needs and sometimes these needs are not met. However, there is limited information on the unmet support needs of child with a chronic illness and their families, including families of children with Asthma.
This study aims to understand the experiences and unmet needs of children living with Asthma or other chronic diseases & their parents.
Participants are invited to complete an online survey. The survey contains some questions about the child’s illness and treatment and how they are going now. Some sections of the survey ask about parents’ experiences including questions about how they are going and about support needs they, their child or other family members may have. There is also space for participants to indicate what they think could be done to assist parents and children.
The survey takes approximately 15 minutes to complete.
This study has been approved by the Deakin University Human Research Ethics Committee. Reference number: HEAG-H53_2020
Complete the survey here
For more information contact Sangeetha Thomas, PhD Research Scholar, School of Psychology, Deakin University at her email thomassa@deakin.edu.au or via Telephone 0416 543 605
Have you ever wanted to help someone with Asthma? If you are living in Brisbane and reasonably healthy, you can help by taking part in a clinical study.
Nucleus Network is trailing a potential new treatment for severe uncontrolled asthma. The study drug can inhibit one of the key cell types involved in the inflammatory process which causes asthma. So, the treatment may improve both asthma control and prevent asthma attack.
At this stage, the trial is designed to investigate how the study drug is metabolized in healthy participants who do not suffer from asthma.
Potential participants will be phone screened before attending a screening visit, during which you will be interviewed by a doctor. Once this interview is completed, and with consent, you will receive several tests to determine your eligibility. If you are eligible, you will then spend six consecutive days & nights at our clinic, with ten follow-up visits.
You can register your interest here: nucleusnetwork.com/comfort or call 1800 243 733
This study has been approved by the Bellberry Human Research Ethics Committee approval number: 2021-04-355