Are you interested in volunteering or participating in asthma research to work towards a cure for asthma, early intervention or investigate new research?
Some research studies require human involvement. They can investigate the possible causes or treatments for asthma, the social or psychological aspects of the conditions or to improve how we deliver care. Some types of research that you could be involved in include;
- Surveys – this could include answering questions by phone or online about your experience living with asthma, such as your diagnosis and management.
- Observational research – this could include researchers tracking your health over time
- Clinical trials – these can assist researchers to find out how different patients respond to treatments, while carefully monitoring the health and safety of the patients who volunteer. All new medical treatments for asthma must go through a clinical trial process.
Clinical research must be approved by a Human Research Ethics Committee before volunteers can be asked to participate. Asthma Australia won’t advertise or promote any research which has not been approved by an accredited ethics committee.
See below for current asthma related research studies which require volunteer participants. These studies are not conducted by Asthma Australia, to find out more about the research use the contact details associated with each study.
Patient experience and role in primary care
The team at Bond University are undertaking a study to explore the experiences of individuals with long term medication conditions in their team care. Participants will complete a 1-hour interview via Zoom where they will be asked about their personal experiences with primary healthcare.
Participants will receive a retail gift voucher as a thank you for their time.
This study has been approved by the Bond University Human Research Ethics Committee. Human Research Ethics Committee approval number: AD02190
HealthMatch is a for-profit social enterprise that applies sophisticated technology to structure clinical trial details and deliver a patient-centric clinical trial recruitment platform. HealthMatch’s mission is to dramatically accelerate patient recruitment to clinical trials, ultimately reducing the time to market for life-saving cures more than existing practices allow. HealthMatch have over 10,000 users across over 300 condition areas. For asthma-related areas, HealthMatch has several current trials and 190 users, growing daily.
Asthma Australia has partnered with HealthMatch to provide members with easy access to the latest clinical trials being conducted throughout Australia.
Have you been diagnosed with asthma, or are you a carer? You can share your experiences and knowledge with scientists to enhance medical research through the Walter and Eliza Hall Institute’s Consumer Buddy Program.
Consumers can have valuable knowledge of the practical, social, physical and emotional effects of the medical condition on themselves, their families and friends and/or on the broader community, says Ms Katya Gray, Institute Consumer Coordinator.
“Consumers involved in the program provide a link between the researcher and the community as well as providing insight into that disease type. They are partnered with a researcher in the area of their interest, or a project relating to their own medical condition,” Ms Gray says.
“Involvement of Consumers can influence and enhance research at the Institute and provide a powerful voice for the communication of scientific and research issues to the community.”
Consumers do not need a science background, the time commitment is online and flexible, and the Institute provides all training.
At present consumers will meet with researchers remotely (online) due to social distancing safety restrictions.
To learn more about joining the Consumer Buddy Program, contact Ms Katya Gray, Institute Consumer Coordinator: Tel: 03 9345 2981 or 0408 525 122, email: firstname.lastname@example.org or visit www.wehi.edu.au/consumers.
The George Institute Australia is looking for people who are interested in helping us shape the direction of our research to maximise the benefits for our society.
To do this we are forming a new Consumer and Community Advisory Committee.
At The George Institute, we value the knowledge and experience that people who use health care services bring to health research. We are therefore looking to work more closely with community members to ensure our research is most relevant to people in those communities and that it makes a real difference to their lives.
The key role of Committee members is to contribute their knowledge and experience by providing consumer, carer and community perspectives on, and input into, the health research and development work at The George Institute, Australia. The attached document provides further information about this opportunity.
Together we can make even more of a difference!
Thank you for your time in considering this opportunity and I look forward to hearing from all who are interested.
Download Expression of Interest form here