Are you interested in volunteering or participating in asthma research to work towards a cure for asthma, early intervention or investigate new research?

Some research studies require human involvement. They can investigate the possible causes or treatments for asthma, the social or psychological aspects of the conditions or to improve how we deliver care. Some types of research that you could be involved in include;

  • Surveys – this could include answering questions by phone or online about your experience living with asthma, such as your diagnosis and management.
  • Observational research – this could include researchers tracking your health over time
  • Clinical trials – these can assist researchers to find out how different patients respond to treatments, while carefully monitoring the health and safety of the patients who volunteer. All new medical treatments for asthma must go through a clinical trial process.

Clinical research must be approved by a Human Research Ethics Committee before volunteers can be asked to participate. Asthma Australia won’t advertise or promote any research which has not been approved by an accredited ethics committee.

See below for current asthma related research studies which require volunteer participants. These studies are not conducted by Asthma Australia, to find out more about the research use the contact details associated with each study.

Murdoch University Research – Are you the parent of a child with asthma?

Are you the parent of a child with asthma?

The team at the Murdoch University are undertaking a study to explore the stress of parenting a chronically ill child. Like many other chronic conditions, we know parents of children with asthma rate significantly higher parenting stress than those with healthy children. Research suggests that treating the stress of parents can significantly improve the health of their children.

This study will be measuring parenting stress to improve research into treatment.

The research involves completing a brief online survey, which will take approximately 15 minutes to complete.

To complete the survey, click here.

If you would like further information, please contact Amber English (student researcher).

Ph 0419784880

Email: amber.english@murdoch.edu.au

This study has been approved by the Murdoch University Human Research Ethics Committee. Human Research Ethics Committee approval number: 2020/20

Curtin University Research – Adjustment and wellbeing in young adults with chronic illness

Adjustment and wellbeing in young adults with chronic illness

The team at Curtin University are undertaking research to understand how to promote wellbeing in young people with chronic illness. It involves completing a brief online survey which will take 20 to 30 minutes.

If you:

  • Are aged 16-25
  • Live in Australia
  • Currently have a diagnosed chronic physical illness, including asthma
  • You can complete the survey here.

If you would like further information, please contact Rebecca Sampson

Email: rebecca.l.sampson@student.curtin.edu.au

This study has been approved by the University of Western Australia Human

Research Ethics Committee. Human Research Ethics Committee approval number:

RA/4/20/5896

Online wellbeing program for young people with chronic illness

Online wellbeing program for young people with chronic illness

The Telethon Kids Institute have developed an online program for young Australians with chronic physical illness. They are looking for people aged 16-25 who have a chronic illness and would like to be involved in research on an online wellbeing program.

You must;

  • Be aged 16-25
  • Live in Australia
  • Be diagnosed with a chronic illness

Participants will be asked to complete a questionnaire online, and will receive a voucher for their participation.

Find out more here

This study has been approved by the Curtin University Human Research Ethics Committee. Human Research Ethics Committee approval number: HRE2019-0386

Bond University Research – Patient experience and role in primary care

Patient experience and role in primary care

The team at Bond University are undertaking a study to explore the experiences of individuals with long term medication conditions in their team care. Participants will complete a 1-hour interview via Zoom where they will be asked about their personal experiences with primary healthcare.

Participants will receive a retail gift voucher as a thank you for their time.

For more information, download the flyer here or contact Alexandra Davidson; ipcpstudy@bond.edu.au; 0413 326 563

This study has been approved by the Bond University Human Research Ethics Committee. Human Research Ethics Committee approval number: AD02190

HealthMatch

HealthMatch

HealthMatch is a for-profit social enterprise that applies sophisticated technology to structure clinical trial details and deliver a patient-centric clinical trial recruitment platform. HealthMatch’s mission is to dramatically accelerate patient recruitment to clinical trials, ultimately reducing the time to market for life-saving cures more than existing practices allow. HealthMatch have over 10,000 users across over 300 condition areas. For asthma-related areas, we have over 6 trials and 190 users, growing daily.

Find out more

University of Technology - Exploring the experience of acupuncture, dietarty and lifestyle advice with asthma patients

The University of Technology are conducting research through a series of case studies to explore the effects of Eight Constitution Medicine (acupuncture with dietary and lifestyle advice) with patients with chronic asthma. People with asthma present with different trigger factors, inflammatory responses and symptoms. The lens on ECM allows a practitioner to give tailored acupuncture treatment and specific lifestyle advice to people with asthma.

Eligible participants with;

  • Have asthma which has been diagnosed for more than 1 year,
  • Currently manage their asthma with their GP, and
  • Have been considering acupuncture as an adjunct support to their care.

Participants will receive 24 free personalised acupuncture treatments for asthma condition by a qualified health practitioner (Doctor of Chinese Medicine), 2 times a week over a period of 12 consecutive weeks, at Invitation to Health, an integrative medical centre in Wyoming.

A participant patient will record Peak Flow meter for self-monitoring asthma and complete forms (asthma control, changes in quality of life) to assess the experience of treatment.

This study has been approved by the UTS Human Research Ethics Committee. Human Research Ethics Committee approval number: ETH20-4694

For further information, please contact

Dr Hyonna Kang, Doctor of Chinese Medicine, PhD (science) candidate

Hyonna.Kang@student.uts.edu.au or by phone 0481 287 346, or

Dr Sean Walsh, PhD (science), Registered Health Care Practitioner

Sean.Walsh@uts.edu.au

Victorian COVID Vaccine Preparedness Study

COVID-19 vaccine delivery may be prioritised for people aged 70 years-old and older, and for adults with chronic conditions like heart disease, respiratory conditions, diabetes, neurological conditions, immunocompromising conditions, renal disease or haematological disorders. The Murdoch Children’s Research Institute want to hear from Victorians about what they want to know about the COVID-19 Vaccines, and how they want to get that information.

They want to understand what is needed to help you make decisions about getting vaccinated. You can help shape the Victorian COVID-19 vaccination communication strategy by completing the Murdoch Children’s Research Institute’s COVID Vaccine Preparedness survey:

https://redcap.link/COVID19Vaccine

This online survey takes 10 minutes and can be completed anonymously. Participants can enter to win one of eight gift vouchers.

This study is led by researchers from the Murdoch Children’s Research Institute with partners from the University of Melbourne, Monash University, The University of Sydney and the University of New South Wales. It is funded by the Victorian Department of Health. To learn more about the study and complete the survey, click HERE

The study has been approved by the Royal Children’s Hospital Melbourne Human Research Ethics Committee.
HREC Reference Number: HREC/72845/RCHM-2021

If you have any questions, please contact Dr Jessica Kaufman 03 9345 4890 or COVIDVaccine@mcri.edu.au

Engage with medical researchers: Join the Consumer Buddy Program

Have you been diagnosed with asthma, or are you a carer? You can share your experiences and knowledge with scientists to enhance medical research through the Walter and Eliza Hall Institute’s Consumer Buddy Program.

Consumers can have valuable knowledge of the practical, social, physical and emotional effects of the medical condition on themselves, their families and friends and/or on the broader community, says Ms Katya Gray, Institute Consumer Coordinator.

“Consumers involved in the program provide a link between the researcher and the community as well as providing insight into that disease type. They are partnered with a researcher in the area of their interest, or a project relating to their own medical condition,” Ms Gray says.

“Involvement of Consumers can influence and enhance research at the Institute and provide a powerful voice for the communication of scientific and research issues to the community.”

Consumers do not need a science background, the time commitment is online and flexible, and the Institute provides all training.

At present consumers will meet with researchers remotely (online) due to social distancing safety restrictions.

To learn more about joining the Consumer Buddy Program, contact Ms Katya Gray, Institute Consumer Coordinator: Tel: 03 9345 2981 or 0408 525 122, email: consumers@wehi.edu.au or visit www.wehi.edu.au/consumers.